CYPCNC Sub Groups

The Children & Young Peoples Cancer Nurses Community has four additional sub groups which sit within its community. These are the CYP Research Nurses, CYP Oncology Outreach Nurses, CYP Bone Marrow Transplant Nurses and CYP Cancer Nurse Education Group.

CYP Research Nurses

The Children & Young People's Research group has been running for 14 years and currently has over 40 members. The group comprises specialist nurses providing services for children and young people diagnosed with cancer, who are registered onto a clinical trial. These trials are either phase III (from point of diagnosis) to new agent trials - phase I and II (when no other conventional treatment is available). Other work streams include support care, late effects and pharmacokinetic/pharmacogenetic studies.

Research nurses are mainly based at regional primary treatment centres, but infrastructure funding from numerous sources is enabling research nurses to be employed within shared care centres. The posts have had a variety of financial sources including the NCRN, Cancer Research UK and Comprehensive Cancer Networks as well as charitable funding.

As the group has evolved and grown and as the numbers and types of trials the group are involved with are increasing; the group now meet three times a year. The chair of the group is elected for a term of three years which can be extended for a further term.

Purpose

The group supports research nurses in the field of paediatric oncology working in any of the 21 centres within the UK on a practical and professional level by providing a network of contacts, in turn promoting liason within between hospitals and individuals so that information and problems regarding trials can be shared. The group provides support and guidance for new research nurses and aims to address aspects of professional role development, education and accountability.

Aims

To provide practical and professional support
To act as a liaison between hospitals and individuals
To share information and troubleshoot amongst group members
To be stakeholders in the development of treatment protocols specifically with regard to PK sampling and information given to parents and children
To support new research nurses
To promote the role and professional development of the research nurse
To consider & promote the ethical issues surrounding research involving children, teenagers and Young Adults
To link with Data Managers in the UK oncology centres
To ensure consistant high quality standards of sample and data collections across all the UK paediatric oncology centres.
To support the coordination and management of clinical trials for Paediatrics, Teenagers and Young Adults

Membership

Open to any research nurse working on any of the portfolio of clinical trials for oncology and haematology. For more information on the group and how to join, please contact chair Selena Peters.

Chair Contact Details

Selena Peters - Research Sister, Haematology & Bone Marrow Transplant, Bristol Royal Hospital for Children, Upper Maudlin Street, Bristol, BS2 8BJ

selena.peters@UHBristol.nhs.uk

CYP Oncology Outreach Nurses

The group has been running over 15 years and is the longest running allied group of the CYPCNC with over 100 members. The group comprises specialist nurses providing services for children and young people diagnosed with cancer, from the point of diagnosis hrough treatment and beyond, including palliative care and end of life care when needed.

Children & Young People's Oncology Outreach Nurses (CYPOONs) are based at either a regional primary treatment centre, a shared care centre or in the community. The posts have a variety of funding resources including Macmillian Cancer Care and CLIC Sargent. Many of the groups members provide a 24 hour on call service to support families in achieving home based end of life care.

The group meets as a whole once a year in london, normally in december and as four regional groups twice a year. The chair of the national group is rotated between the chairs of the regional groups.

Purpose & Aims

To work with other health care professionals and voluntary groups involved in caring and supporting children, young people and their families locally, nationally and internationally to ensure improving outcomes
To act as a role model in specialist paediatric palliative care, providing support and education to Multidisciplinary members and allied professionals
To support learning and development opportunities for members to enhance and develop their practice, knowledge and skills through education, project work and national collaboration.
To work closely with CYPCNC to advise and infrom others in the care of children and young people with cancer.

Membership

Open to nurses caring for children and young people with cancer in an outreach capacity. Membership is divided into four regions: Midlands, North, South & South West.

Chair Contact Details

Jodi Betts - Paediatric Oncology Clinical Nurse Specialist, Addenbrookes Hospital, Hills Road, Cambridge, CB2 2QQ

Email - Jodi.betts@addenbrookes.nhs.uk

Midlands Chair

Jodi Betts- as above

North Chair

South Chair

Lucy Coombes - lucycoombes@rmh.nhs.uk

Pippa Chesterfield - Pippachesterfield@suht.swest.nhs.uk

South West Chair

Ally Richardson - allison.richardson@ruh-bath.swest.nhs.uk

CYP Bone Marrow Transplant Nurses

Established in feburary 2006, the Children & Young People's Bone Marrow Transplant nurses group is the national voice for paediatric specialist nurses working within bone marrow transplant. The group meets twice a year to work on naional guidelines, benchmark procedure, information booklets and audit. Members of the group work closely with the HTA in assessing sibling donors under the age of 16.

In addition to attending the CYPCNC conferences the BMT group aim to have twice yearly conferences, hosted in one of the BMT centres.

Purpose & Aims

To produce national guidelines
To produce information booklets
To provide benchmarking standards
To educate nationally
To have joint medical/nursing audit meetings

Chair Contact Details

Nikki Bennet-Rees - bennen@gosh.net.uk

CYP Cancer Nurse Education Group

The group has been running for approximately 14 years and currently has over 25 members. The group comprises academics, lecturer practitioners and practice educators working in the field of children and young People's cancer across 21 Primary Treatment Centres. The group would like to expand and include nurses with an education remit from the shared care centres.

Purpose

The group supports nurses in education roles with CYP cancer care by holding two meetings per year. The meetings rotate around the primary treatment centres and support is offered by email or telephone to members at all other times. The group maintains knowledge of available courses in CYP cancer care and works to understand and help maintain the viability of courses. The group also helps to support each other in the development of education and training in the clinical environment and work with allied groups to identify and dvelop new initiatives for education and training.

Aims

To provide up to date information on available courses throughout the UK
To support staff in meeting competencies to care for CYP with cancer
To look at new ways of working to help support professional development
To support new educators in post
To work alongside other members of the MDT to further develop education and training

Membership

Any nurse working in an education role with Children and Young People's Cancer and lecturers/lecturer practitioners working in or with higher education institutions to deliver oncology related courses.