Patient focus updates - 24 January 2013
New policy, guidance and initiatives from across the UK that focus on the patient perspective and experience. For more information about this theme see Quality and Safety e-Bulletin: Patient focus.
Some of the resources linked to are in PDF format - see how to access PDF files.
1000 Lives Plus: Teams in NHS Wales work to ensure care is focussed on people and patients. Ensuring Patient and Person Driven Care is the theme of the latest e-newsletter from 1000 Lives Plus. Teams from across NHS Wales discuss how they are putting patients at the centre of their work including an item on how patient stories are being used to inform improvement work.
Patient stories used to drive service improvement in Cwm Taf Health Board.
Agency for Healthcare Research and Quality (AHRQ) Innovations Exchange: Patient-centered hospital design. Patient-centred hospital design can improve patient care and satisfaction, as well as quality of services, safety, and employee retention. The featured tools and innovations provide guidance and the rationale for designing patient-centred hospitals and tools to help improve patient-entered care [American].
BMJ Quality and Safety: Honouring patient's resuscitation wishes: a multiphased effort to improve identification and documentation. “Do Not Resuscitate (DNR) orders are intended to safeguard patients' autonomy and prevent unwanted resuscitative care. However, DNR orders may be miscommunicated between health care providers, leading to errors honoring patient wishes during cardiac arrest events. This project focused on improving accuracy of DNR ordering processes for an academic, tertiary care hospital.”
DH: Resources to support information sharing to tackle violence. Hospitals are well placed to promote community safety and wellbeing through collecting information about patients who have been assaulted and sharing information appropriately. This can be done without compromising patient confidentiality.
HSCIC: Provisional Monthly Patient Reported Outcome Measures (PROMs) in England - April 2011 to March 2012, Pre- and post-operative data, January 2013 release. This provisional publication of PROMs data includes eligible HES episodes with an episode start date between 1 April 2011 and 31 March 2012 and pre-operative questionnaires with a completion date between 1 April 2011 and 31 March 2012. Where a patient did not record the date that they completed the pre-operative questionnaire, the pre-operative questionnaire scan date is used. Any post-operative questionnaires that are linked to an eligible pre-operative questionnaire and have been sent out to patients, returned and scanned prior to processing (end of November 2012) are included for analysis.
House of Commons Joint Select Committee: Draft care and Support Bill forum. The Joint Committee chaired by Paul Burstow MP, is conducting pre-legislative scrutiny of the draft Bill and has set up this web forum to hear the views of carers. "The Committee would like to hear about your experiences as a carer and what impact you think the Government’s proposed legislation might have on your own situation, either positive or negative". They particularly want views on three key areas: responsibilities of local authorities; assessing needs; safeguarding adults at risk of abuse and neglect.
Institute for Research and Innovation in Social Services (IRISS): Spirituality and ageing: implications for the care and support of older people. The report from IRISS, which is based in Scotland, discusses ways of thinking about spirituality and the health and social care policy drivers for incorporating spiritual care into practice, and looks at the links between person-centred care, dignity and spirituality.
Moore Adamson Craig Partnership (MAC) and InHealth Associates: Embedding patient and public engagement: a report on learning from interviews with CCG leaders (PDF 159KB). This work was commissioned by the Department of Health on behalf of the NHS Commissioning Board (NHSCB) to research the issues around “what support do CCGs need to embed patient and public engagement?”. The aim was to get a sense of how PPE (patient and public engagement) was being understood and integrated into the emerging CCGs. This report focuses on the findings and key themes from diagnostic research interviews with a sample of CCG (Clinical Commissioning Group) leaders and offers suggestions about how the development needs of CCGs might be met. The report is made available by NHS Networks.
Summary: Embedding patient and public engagement A report on learning from interviews with CCG leaders (PDF 86KB).
NHS Wales Informatics Service: Revised guidance in Wales on protecting information. A revised Caldicott 'Principles into Practice' manual advising health staff about protecting personally identifiable information in NHS Wales is now available. The 2012 revision reflects organisational change and increased Governance responsibilities including the establishment of the Wales Information Governance Board (WIGB) as well as updated sections used to measure compliance.
Right Care: Right Care Decision Aids. Right Care has launched 14 patient decision aids. The aim of the Right Care shared decision making programme is to embed shared decision making in NHS care. This is part of the wider ambition to promote patient centred care, to increase patient choice, autonomy and involvement in clinical decision making and make “no decision about me, without me” a reality. These aids help people think about healthcare decisions in the context of their lives.

