Supporting people with dementia
These pages provide resources that will help you with understanding the needs of people living with dementia at different points of the journey, and with implementing appropriate care.
Resources and tools have been brought together on the following aspects of dementia care:
- early identification, diagnosis and assessment
- decision making and capacity
- person-centred care planning
- involving people with dementia and their carers
- supporting physical health
- therapeutic activities
- environment and assistive technology
- responding to distressed behaviour (includes resources
on antipsychotic medication)
- young-onset dementia
- learning disabilities
- dementia and diversity
- end of life care.
These resources provide information on dementia, and signpost resources on many different aspects of care.
The resources were last accessed on 16 July 2014. Some of them are in PDF format - see how to access PDF files.
Alzheimer's Society: Factsheets
The Alzheimer's Society provides factsheets covering a wide range of topics. They are organised under headings such as: causes of dementia, progression and drug treatment; emotional and practical support; legal and financial information.
Alzheimer's Society / RCN (2013) 'This is Me' leaflet
This downloadable leaflet, originally developed for people with dementia who were going into hospital, has now been updated and is relevant for people with dementia who are receiving professional care in any setting. It is a practical tool that people with dementia can use to tell staff about their needs, preferences, likes, dislikes and interests. It supports health and social care staff in the gathering of personal/ life history information from individuals with dementia, and in delivering care more specifically tailored to individual needs.
The Alzheimer’s Society with support from RCN Wales has produced 'This is me/Dyma fi' - a bilingual leaflet intended to provide professionals with information about the person with dementia as an individual. The aim is to enhance the care and support given while the person is in an unfamiliar environment. See:
Dementia information portal
The portal, which is available on the Department of Health website, provides information and resources for individuals and organisations involved in the implementation of the national Dementia Strategy [you will need to register in order to access the portal].
The Dementia Roadmap provides high quality information about the dementia journey alongside local information about services, support groups and care pathways to assist primary care staff to more effectively support people with dementia and cognitive impairment, their families and carers. The main audience is staff working in primary care, including GPs, nurses, dementia navigators and practice managers.
Department of Health (2011) Living well with dementia: a National Dementia Strategy - good practice compendium
This good practice compendium has been compiled from across the regions to support local delivery of the national dementia strategy. It brings together practice examples on a wide range of dementia care.
Map of Medicine: Healthguides pathway - Dementia
The Map of Medicine shows the ideal, evidence-based patient journey for common and important conditions. It is an overview that can be shared by patients and healthcare providers.
NHS Evidence: Dementias
This NHS Evidence topic page provides links to dementia guidance, commissioning documents and ongoing research.
NICE Pathways: Dementia overview
NICE Pathways is an online tool for health and social care professionals that brings together all related NICE guidance and associated products in a set of interactive topic-based diagrams. The dementia pathway covers supporting people with dementia and their carers in health and social care. Information is provided at each stage of the pathway and there are also sections which list all the relevant NICE guidance and bring together implementation information and tools.
NICE Quality Standards: Dementia
NICE quality standards are a set of specific, concise statements that act as markers of high-quality, cost-effective patient care, covering the treatment and prevention of different diseases and conditions. The dementia quality standard has ten statements. For each statement there is a description of what the quality statement means for each audience (service providers, health and social care professionals, commissioners and people with dementia), structure and processes for quality measures are also given.
RCN Dementia: Best practice examples
Practitioners share improvements they have made in the delivery of dementia care and services describing what changes occurred as a result of their initiatives and what they learned from the experience. The stories have been arranged according to the five key ingredients in the Commitment to the care of people with dementia in general hospital - see Commitment to the care of people with dementia in general hospitals - Make SPACE for good dementia care.
RCN Older people
This brings together a range of resources that can inform and support care for older people. It includes information and publications from work that the RCN has been carrying out on older people's care such as the guidance on safe staffing levels for older people’s wards. There is a best practice gallery highlighting examples of good practice in older people’s care and demonstrating the RCN Principles of Nursing Practice, and policy and guidance from across the UK are also signposted.
RCN Principles of Nursing Practice
The Principles of Nursing Practice describe what everyone can expect from nursing practice in any setting whether colleagues, patients, their families and carers. They provide a framework for quality improvement. In this resource we will also point to the Principles which are particularly relevant to specific aspects of care.
This resource aims to help RCN members locate information that is practical, useful, relevant and adaptable in different settings. Resources are arranged under the headings: adult; children and young people; vulnerable people; safeguarding professionals.
Reading Well Books on Prescription for dementia recommends books you might find helpful if you have dementia, are caring for someone with dementia or would like to find out more about the condition. The books provide information and advice, support for living well, advice for relatives and carers, and personal stories. They are endorsed by health professionals and can all be found in the local library.
Scottish Government: Standards of care for dementia in Scotland
“These standards have been developed to help people with dementia and their carers understand their rights, and how these rights can help make sure that they receive the support they need to stay well, safe and listened to”.
Social Care Institute for Excellence: Dementia Gateway
This gateway is aimed at health and social care practitioners who work with people with dementia in nursing, residential or domiciliary settings. It is organised into different sections which bring together tools, activities, practical tips and case studies. It also includes a good practice exchange.
SCIE: What is the Dementia Gateway?
This short promotional video introduces the Social Care Institute for Excellence (SCIE) Dementia Gateway which was relaunched to support the dementia G8 summit on 11 December 2013. It is a comprehensive web resource for everyone supporting people with dementia. View: What is the Dementia Gateway?
SCIE TV. Living with dementia
This film shows how supportive relationships with families, friends and professional carers can play a key role in supporting people with dementia. The film is a powerful reminder of the importance of getting to know the person with advancing dementia as an individual and to help support them to maintain their own identity.