dcsimg

Dementia - person-centred care planning

On this page you will find resources that support person-centred care planning. You may also find it useful to look at the resources under Communication and Involving people with dementia and their carers.

In other sections of the website you can also:

Resources are arranged under the following headings:

The resources below were last accessed on 13 February 2013. Some of them are in PDF format - see how to access PDF files.

Resources and tools

Alzheimer’s Society: Caring for a person with dementia
This section of the Alzheimer’s Society website provides general information for carers on many aspects of caring for the person with dementia. The society also provides a range of dementia-related information and resources for primary care teams. See: Primary care.

Alzheimer's Society / RCN (2013) 'This is Me' leaflet
This downloadable leaflet, originally developed for people with dementia who were going into hospital, has now been updated and is relevant for people with dementia who are receiving professional care in any setting. It is a practical tool that people with dementia can use to tell staff about their needs, preferences, likes, dislikes and interests. It supports health and social care staff in the gathering of personal/ life history information from individuals with dementia, and in delivering care more specifically tailored to individual needs. "It can also help to prevent issues with communication, or more serious conditions such as malnutrition and dehydration".

Alzheimer’s Society: Getting personal? Making personal budgets work for people with dementia
This report focuses on personal budgets and presents new evidence on the benefits and challenges of using personal budgets and direct payments. This evidence is intended to support commitment to ensure personal budgets for all by 2013 in England and to support discussions around personal care and the use of personal budgets in Northern Ireland and Wales.

British Geriatrics Society: Dignity - Behind closed doors
The aim of this campaign is to raise awareness that people, whatever their age and physical ability, should be able to choose to use the toilet in private in all care settings. Educational leaflets, decision aides, standards and check lists are available to download for voluntary groups, patient and carer groups and care staff.

Flinders University: Come into my world - How to interact with a person who has dementia
The purpose of this Australian educational resource is to illustrate that by using a more person-centred care approach, undergraduate healthcare students can improve both the quality of their practice and the wellbeing of the person with dementia. The educational resource consists of an on-line multidisciplinary DVD with a supporting workbook based on the work of Professor Tom Kitwood (1997) and Professor Dawn Brooker (2007).

Mental Health Foundation (2011) Personalisation and dementia: a practitioner’s guide
This guide is part of the Dementia Choices project which was set up to explore self-directed support for people living with dementia, their families and friends and staff who support them. The guide has been written in conversational style using questions posed by people living with dementia and the corresponding practitioner answer which social care practitioners can use to help them explain how self-directed support might be useful for someone living with dementia.

National End of Life Care Programme: Commissioning person centred end of life care
This guide identifies the main elements involved in commissioning end of life care services, it explains the commissioning cycle in practical terms and offers a four-stage approach across all sectors. It also provides a wide range of links to tools and sources of support for both commissioners and providers of services. It also showcases good practice and seeks to indicate what a well-commissioned end of life care service looks like.

NICE Pathways: Dementia overview
The NICE dementia pathway brings together all related NICE guidance and associated products in interactive topic based diagrams. For particularly relevant sections, see: Integrated and coordinated care, Promoting independence and maintaining function, and Principles of care.

NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) for South Yorkshire et al: The Voice of dementia
The "Voice of Dementia" film shows people with dementia talking about their lives, their diagnosis and the importance of being listened to. It begs the question - why are these people marginalised when it comes to decisions about their lives, and what can we do to change this? The film is an outcome from a larger CLAHRC SY project about exploring how people with dementia could be better involved in service feedback, evaluation and planning

RCN: Dignity
This resource promotes dignified care and provides a range of resources to put this into practice.

RCN: Dignity in health care
This learning resource will strengthen your understanding and practice in promoting dignity for your patients or clients and your colleagues.

RCN Principles of Nursing Practice
Principle A: Nurses and nursing staff treat everyone in their care with dignity and humanity - they understand their individual needs, show compassion and sensitivity, and provide care in a way that respects all people equally. Details of RCN resources that support dignity are at Principle A.

South West Yorkshire Partnership: Portrait of a life video clips
The 'Portrait of a life' multimedia toolkit has evolved from a trust driven collaborative project that was originally launched in November 2006. A key objective of the project was to increase activity in life story work in acute hospitals, care homes and as well as community and mental health services. This toolkit helps to ensure that care is truly centred around the person.

Think Local Act Personal: Making It Real tools
The Making it Real programme encourages organisations that pay for or provide social care services to get real about improving people's lives. These tools have been produced in order to support this programme and include practical examples of what organisations are doing to transform their services, in partnership with the people who use them and will help people to understand and engage in the personalisation of the care and support agenda.
Making it real for carers.
Making it real for people with dementia (PDF 1.6MB).

See also resources about using life stories in supporting patient-centred care planning. Life story resources are at Therapeutic activities.

Stories and good practice examples

Practitioners have shared improvements they have made in the delivery of dementia care and services describing what changes occurred as a result of their initiatives and what they learned from the experience. The stories have been arranged according to the five key ingredients in the Commitment to the care of people with dementia in general hospitals. To read these improvement stories see Best practice examples.

Department of Health (2011) Living well with dementia: a National Dementia Strategy - good practice compendium
This good practice compendium has been compiled from across the regions to support local delivery of the national dementia strategy. It brings together practice examples on a wide range of dementia care.

Healthtalkonline: Becoming a carer: assessment and care plans
People with dementia and carers talk about different aspects of getting a care plan - some of the difficulties experienced and also the advantages of a good care plan.

Mental Health Foundation: Raising awareness of self-directed support for people living with dementia
This suite of films is part of a range of resources launched in response to the findings of Dementia Choices, a two-year project which found that people with dementia, their carers and social care workers are in need of more practical information about how self-directed support (including direct payments and personal budgets) can help improve their care.

SCIE Dementia Gateway, Dementia Good Practice Exchange: Person-centred services for older people with dementia and mental health issues
This good practice example describes how moving to a new purpose-built residential care home gave the opportunity to develop person-centred approaches.

SCIE Dementia Gateway, Dementia Good Practice Exchange: Personalisation of residents' rooms
Door knockers for all residents' rooms have helped to remind staff about privacy and dignity for residents.

Standards

For relevant standard statements and associated guidance see:

NICE quality standards: Dementia standard
See statements 3,4, and 7.

Scottish Government: Standards of care for dementia in Scotland
As a person with dementia:
I have the right to be regarded as a unique individual and to be treated with dignity and respect.
I have the right to access a range of treatment, care and supports.
I have the right to be as independent as possible and be included in my community.

For overarching resources and resources on other specific aspects of care see Supporting people with dementia.