Nurse representation in research funding bodies

It is important that the nursing voice is heard in the strategic planning of government research funding programmes (including the UK CRC) and major healthcare research funding bodies, and one way of doing this is for nurses to be represented on relevant strategic boards/panels etc. Please find below a list of government programme and funding bodies, with any know nurse representation on their boards/panels. Please let us know of any ommissions and/or inaccuracies by emailing Dave O'Carroll, email: david.ocarroll@rcn.org.uk.

 

Government programmes

  • Chief Scientist Office (Scotland)
  • NHS Research Scotland
  • NICRN (Northern Ireland Clinical Research Network)
  • NIHR Clinical Research Network
  • NIHR Health Services and Delivery Research programme
  • NIHR Health Technology Assessment programme
  • NIHR Research for Patient Benefit Programme
  • NIHR Trainees Co-ordinating Centre
  • NISCHR Registered Research Groups
  • UK Clinical Research Collaboration (UK CRC)

Funding bodies and nurse representation

  • Asthma UK
  • Bereavement Research Forum (BRF)
  • BUPA Foundation
  • The Healing Foundation
  • Medical Research Council (MRC)
  • Parkinson's UK
  • Research Council for Complementary Medicine (RCCM)
  • The Trauma Audit and Research Network (TARN)

 

Asthma UK

Bereavement Research Forum (BRF)

  • Name of board: Steering Committee (made up of 7 members)
  • Nurse representation: Dawn Chaplin, Heart of England NHS Foundation Trust AND Mollie Cook, Guy's and St Thomas' NHS Foundation Trust
  • Website: http://www.brforum.org.uk/index.htm

BUPA Foundation

  • Name of board: BUPA Foundation Board (made up of 16 members)
  • Nurse representation: Professor Mary Watkins, University of Plymouth
  • Website: BUPA Foundation

Chief Scientist Office (Scotland)

  • Name of board: Research Advisory Committee (made up of 29 members)
  • Nurse representation: Professor Francine Cheater, Glasgow Caledonian University
  • Website: CSO Research Advisory Committee

The Healing Foundation

  • Name of board: Research Council (made up of 15 members)
  • Nurse representation: none (previously Professor Sara Faithfull, University of Surrey)
  • Website: The Healing Foundation

Medical Research Council

NHS Research Scotland

  • Name of board: NRS Strategy Board (made up of ? members)
  • Nurse representation: Unknown
  • Website: http://www.cso.scot.nhs.uk/index.php/nrs/nrs-structure
  • Name of board: Scottish Children's Research Network Core Team (made up of 9 members)
  • Nurse representation: Donna Nelson and Victoria Thomson, Craig Unit CRF; Susan MacFarlane and Debbie Rice, Tayside CRF; Kay Riding, Edinburgh Royal Hospital for Sick Kids CRF; Liz Waxman, Glasgow Yorkhill CRF
  • Website: http://www.scotcrn.org/
  • Name of board: Scottish Diabetes Research Network executive steering group (made up of 11 members)
  • Nurse representation: Shona Brearley, Scottish Diabetes Research Network
  • Website: http://www.sdrn.org.uk/?q=about
  • Name of board: Scottish Stroke Research Network executive group (made up of 16 members)
  • Nurse representation: Grace Lindsay, Glasgow Caledonian University and NHS Greater Glasgow & Clyde
  • Website: http://www.ssrn.org.uk/index.php
  • Name of board: Scottish Mental Health Research Network advisory board (made up of members)
  • Nurse representation: Unknown
  • Website: http://www.smhrn.org.uk/about/about.asp
  • Name of board: Scottish Dementia Clinical Research Network (made up of 11 members)
  • Nurse representation: Emma Law, SDCRN
  • Website: http://www.sdcrn.org.uk/
  • Name of board: Scottish Cancer Research Network (made up of members)
  • Nurse representation: Unknown
  • Website: http://www.scrn.org.uk/eng.php
  • Name of board: Scottish Primary Care Research Network (made up of members)
  • Nurse representation: Unknown
  • Website: http://www.sspc.ac.uk/spcrnaboutus-item

NICRN (Northern Ireland Clinical Research Network)

  • Name of board: (made up of members)
  • Nurse representation:
  • Website:

NIHR Clinical Research Network

  • Name of board: NIHR Diabetes Research Network Clinical Studies Advisory Group (made up of 13 members)
  • Nurse representation: None
  • Website: http://www.ukdrn.org/csag/default.aspx
  • Name of board: NIHR Dementias and Neurodegenerative Diseases Research Network (made up of members)
  • Nurse representation:
  • Website:
  • Name of board: NIHR Medicines for Children Research Network Board (made up of members)
  • Nurse representation:
  • Website:
  •  

NIHR Health Services and Delivery Research programme

  • Name of board: HS&DR Commissioning Board (researcher-led workstream) (made up of 22 members)
  • Nurse representation: Professor Kate Seers, RCN Research Insitute, University of Warwick; Professor Christopher Todd, University of Manchester; Mrs Carole Langrick, Mid Yorkshire Hospitals NHS Trust
  • Website: http://www.netscc.ac.uk/hsdr/hsrboard.html
  • Name of board: HS&DR Prioritisation Panel (commissioned workstream) (made up of 21 members)
  • Nurse representation: Marina Lupari, Northern Health and Social Services Board; Dr Christine Barrett, Independent healthcare workforce consultant; Mr Nigel Davies, Royal Berkshire NHS Foundation Trust;
  • Website: http://www.netscc.ac.uk/hsdr/hdrpanel.html
  • Name of board: HS&DR Commissioning Board (commissioned workstream) (made up of 21 members)
  • Nurse representation: Professor Davina Allen, Cardiff University; Professor Vari Drennan, Kingston University and St George's, University of London; Professor Claire Goodman, University of Hertfordshire; Professor Fiona Ross, Kingston University and St George's, University of London; Professor Jo Rycroft-Malone, Bangor University; Professor Jane Sandall, King's College London
  • Website: http://www.netscc.ac.uk/hsdr/hdrboard.html

NIHR Health Technology Assessment programme

  • Name of board: Prioritisation Group (made up of 9 members)
  • Nurse representation: none
  • Website: NIHR HTA programme Prioritisation Group
  • Name of board: HTA Clinical Evaluation and Trials Board (made up of 19 members)
  • Nurse representation: None
  • Website: NIHR HTA programme HTACTB
  • Name of board: HTA Commissioning Board (made up of 21 members)
  • Nurse representation: Professor Andrea Nelson, University of Leeds  AND Professor Caroline Watkins, University of Central Lancashire
  • Website: NIHR HTA programme HTACB
  • Name of board: HTA Editorial Board (made up of 10 members)
  • Nurse representation: None
  • Website: NIHR HTA programme EB
  • Name of panel: Diagnostic Technologies and Screening Panel (DTSP) (made up of 20 members)
  • Nurse representation: Professor Julie Jomeen, University of Hull
  • Website: NIHR HTA programme DTSP
  • Name of panel: Disease Prevention Panel (DPP) (made up of 18 members)
  • Nurse representation: None (but Professor Woody Caan, University of East Anglia, sits on the panel)
  • Website: NIHR HTA programme DPP
  • Name of panel: External Devices and Physical Therapies Panel (EDaPT) (made up of 19 members)
  • Nurse representation: Professor Andrea Nelson, University of Leeds
  • Website: NIHR HTA programme EDaPT
  • Name of panel: Interventional Procedures Panel (IPP) (made up of 21 members)
  • Nurse representation: None
  • Website: NIHR HTA programme IPP
  • Name of panel: Pharmaceutical Panel (PHP) (made up of 20 members)
  • Nurse representation: Dr Sue Jordan, Swansea University
  • Website: NIHR HTA programme PHP 
  • Name of panel: Psychological and Community Therapies Panel (PCTP) (made up of 16 members)
  • Nurse representation: Dr Karen Roberts, Nurse/Consultant, Dunston Hill Hospital
  • Website: NIHR HTA programme PCTP

NIHR Research for Patient Benefit Programme

  • Name of board: Regional Advisory Committee, North East (made up of 17 members)
  • Nurse representation: Dr Karen Roberts, Gateshead Health NHS Trust Expertise
  • Website: NIHR RfPB programme RAC North East
  • Name of board: Regional Advisory Committee, North West (made up of 18 members)
  • Nurse representation: Dr Moira Attree, University of Manchester; Dr Mary O'Brien, Edge Hill University
  • Website: NIHR RfPB programme RAC North West
  • Name of board: Regional Advisory Committee, Yorkshire and the Humber (made up of 22 members)
  • Nurse representation: Professor Jane Nixon, University of Leeds; Professor Karen Spilsbury, University of York
  • Website: NIHR RfPB programme RAC Yorkshire and the Humber
  • Name of board: Regional Advisory Committee, East Midlands (made up of 18 members)
  • Nurse representation: Dr Kristian Pollock, University of Nottingham;
  • Website: NIHR RfPB programme RAC East Midlands
  • Name of board: Regional Advisory Committee, West Midlands (made up of 20 members)
  • Nurse representation: Professor Gill Furze, Coventry University;
  • Website: NIHR RfPB programme RAC West Midlands
  • Name of board: Regional Advisory Committee, East of England (made up of 19 members)
  • Nurse representation: Dr Frances Bunn, University of Hertfordshire; Ms Carol Smith, University of East Anglia; Dr Patricia Wilson, University of Hertfordshire
  • Website: NIHR RfPB programme RAC East of England
  • Name of board: Regional Advisory Committee, London (made up of 20 members)
  • Nurse representation: Professor Carol Cox, City University, London; Professor Ruth Harris, Kingston University and St. George's, University of London; Professor Alison Metcalfe, King's College London;
  • Website: NIHR RfPB programme RAC London
  • Name of board: Regional Advisory Committee, South East Coast (made up of 15 members)
  • Nurse representation: Dr Nicola Carey, University of Surrey; Professor Tom Quinn, University of Surrey; Professor Julie Scholes, University of Brighton
  • Website: NIHR RfPB programme RAC South East Coast
  • Name of board: Regional Advisory Committee, South Central (made up of 17 members)
  • Nurse representation: Dr Liz Tutton, University of Warwick 
  • Website: NIHR RfPB programme RAC South Central
  • Name of board: Regional Advisory Committee, South West (made up of 19 members)
  • Nurse representation: Professor Margaret Fletcher, University of the West of England, Bristol; Professor Bridie Kent, Plymouth University
  • Website: NIHR RfPB programme RAC South West

NIHR Trainees Co-ordinating Centre

  • Name of board: NIHR Doctoral Research Fellowship panel (made up of 29 members)
  • Nurse representation: Professor Peter Griffiths, University of Southampton; Dr Gretl McHugh, University of Manchester; Professor Anne-Marie Rafferty, King's College London
  • Website: http://www.nihrtcc.nhs.uk/nihrfellow/
  • Name of board: NIHR Post-Doctoral, Career Development & Senior Research Fellowships panel (made up of 29 members)
  • Nurse representation: Professor Christi Deaton, University of Manchester; Dr Ann McDonnell, Sheffield Hallam University; Professor David Richards, University of Exeter
  • Website: http://www.nihrtcc.nhs.uk/nihrfellow/
  • Name of board: NIHR Research Professorships panel (made up of 7 members)
  • Nurse representation: None
  • Website: http://www.nihrtcc.nhs.uk/researchprofessor/
  • Name of board: NIHR Clinical Trials Fellowship panel (made up of 8 members)
  • Nurse representation: None
  • Website: http://www.nihrtcc.nhs.uk/nihrclinicaltrialsfellowships/index
  • Name of board: NIHR Knowledge Mobilisation Fellowship scheme panel (made up of 12 members)
  • Nurse representation: Professor Kate Gerrish, University of Sheffield; Professor Jo Rycroft-Malone, Bangor University
  • Website: http://www.nihrtcc.nhs.uk/kmf/

NISCHR Registered Research Groups

  • Name of board: Cardiovascular Research Group Cymru (made up of 27 members)
  • Nurse representation: Abby Waters, NISCHR CRC, South East of Wales
  • Website: http://www.wales.nhs.uk/sites3/home.cfm?orgid=949
  • Name of board: Lung Research Wales
  • Nurse representation: Unknown
  • Website: http://www3.uwic.ac.uk/english/health/research/cbr/lungresearch/pages/index.aspx
  • Name of board: Wales Dementias and Neurodegenerative Diseases Research Network Steering Group (made up of 37 members)
  • Nurse representation: Dr Seren Roberts, Bangor University
  • Website: http://neurodemcymru.org/
  • Name of board: Mental Health Research Network - Cymru executive committee (made up of 27 members)
  • Nurse representation: Dr Anne Fothergill, University of South Wales; Dr Seren Roberts, Bangor University; Steven Williams, Consultant Nurse, Pembrokeshire
  • Website: http://www.mhrnc.org/exec.htm
  • Name of board: Older People & Ageing Research and Development Network (made up of 7 members)
  • Nurse representation: None
  • Website: http://www.opanwales.org.uk/team.htm
  • Name of board: Thematic Research Network for Emergency and UnScheduled Treatment (TRUST) executive group (made up of 18 members)
  • Nurse representation: None
  • Website: http://www.trustresearch.org.uk/en/about-us.htm
  • Name of board: Children and Young People Research Network executive committee (made up of 15 members)
  • Nurse representation: Professor Billie Hunter, Cardiff University; Professor Jane Noyes, Bangor University; Dr Julia Sanders, South East Wales Trials Unit
  • Website: http://www.link-wales.org.uk/index.php?page=executive-committee&hl=en_GB
  • Name of board: Cancer (made up of 16 members)
  • Nurse representation: Mim Evans, Wales Cancer Research Network; Sue Kearney, Royal Gwent Hospital; Barbara Moore, Cancer Research UK Senior Nurse; Gill Palmer, Singleton Hospital; Jane Stockport, Glan Clywd Hospital
  • Website: http://www.cancerrrg-palliativecare.org/about-us.php
  • Name of board: Learning Disabilities, Autism and Neurodevelopmental Disorders research strategy group (made up of 8 members)
  • Nurse representation: Professor Ruth Northway, University of South Wales
  • Website: http://www.ldancymru.org.uk/
  • Name of board: Welsh Arthritis Research Network strategic board (made up of 9 members)
  • Nurse representation: None
  • Website: http://www.warnwales.co.uk/warn-structure.htm
  • Name of board: Microbiology and Infection Translational Research Group steering group (made up of 16 members)
  • Nurse representation: None
  • Website: http://www.mitreg.co.uk/steering-group
  • Name of board: Patient Safety and Healthcare Quality Research Group (made up of members)
  • Nurse representation:
  • Website:
  • Name of board: All Wales Kidney Research Network (made up of members)
  • Nurse representation:
  • Website:
  • Name of board: Wales School for Primary Care Research (made up of 6 members)
  • Nurse representation: Professor Joyce Kenkre, University of South Wales
  • Website: http://www.wspcr.ac.uk/leadership-team.php
  • Name of board: Diabetes Research Network (made up of members)
  • Nurse representation:
  • Website: http://diabeteswales.org.uk/index.htm
  • Name of board: Wales Epilepsy Research Network executive management committee (made up of members)
  • Nurse representation: Ms Vicki Myson, Cardiff & Vale NHS Trust
  • Website: http://www.wern.swan.ac.uk/wern_members.html#executive
  • Name of board: Public Health Improvement Research Network (made up of 9 members)
  • Nurse representation: None
  • Website: http://phirn.org.uk/contact/
  • Name of board: Epidemiology & Screening Research Unit (made up of members)
  • Nurse representation:
  • Website:

Parkinson's UK

  • Name of board: Research Advisory Panel (made up of 31 members)
  • Nurse representation: none (but Professor George Kernohan sits on the panel and is a member of the Institute of Nursing and Health Research, University of Ulster)
  • Website: Parkinson's UK

Research Council for Complementary Medicine (RCCM)

The Trauma Audit and Research Network (TARN)

  • Name of board: Executive Board (made up of 18 members)
  • Nurse representation: Gabby Lomas, Salford Royal NHS Foundation Trust
  • Website: TARN

UK Clinical Research Collaboration