8.2.3 Education in pulmonary rehabilitation: What and how do patients want to learn? (182)

Julie Wilson, Respiratory Research Nurse, Respiratory Medicine, Belfast City Hospital, Belfast, United Kingdom Co authors: Brenda O'Neill, Jacqueline Reilly, Joseph MacMahon & Judy Bradley

Abstract:

Objective:

To ascertain from the patients’ perspective what should be included in the educational component of pulmonary rehabilitation and how this should be delivered and compare this to the views of health professionals.

<32>Design:

Qualitative research method using focus groups with patients and health professionals. Setting: A regional respiratory centre and outpatient clinic.

Participants:

Purposive samples of thirty-two patients with chronic obstructive pulmonary disease attended 6 focus groups; and eight health professionals knowledgeable about chronic obstructive pulmonary disease and pulmonary rehabilitation attended a multidisciplinary focus group. Intervention: Participants attended one focus group (2-3 hours) guided by an interview schedule, consisting of open-ended questions relating to educational needs and delivery preferences.

Data analysis:

Focus groups were videotaped and analysed using a grounded approach. The findings were posted to participants for verification, accompanied by a patient demographic/lifestyle questionnaire.

Results:

Deficits in patients’ knowledge, understanding and management of their disease were identified. Six key educational topics emerged, these were; disease education, management of breathlessness, management of an exacerbation, medication, psychosocial support and welfare and benefits system. Patients and health professionals preferred group information sessions, provided by knowledgeable individual(s), using plain language supplemented by written information.

Conclusion:

This study identified deficits in patients’ knowledge, understanding and management of their COPD. In order to promote self-management, health professionals should ensure that the educational components included in pulmonary rehabilitation programmes meet patients’ needs, in a format that is acceptable to patients. References:

Biography:

Julie is a Respiratory Research Nurse at Belfast City Hospital. Her research interests are COPD, smoking cessation and self-management. She currently has a research grant to develop an Action Plan for patients with COPD.