6. Relocation, relocation - learning through reflection (211)

Polly Tarrant, Lead Research Nurse, Wellcome Trust Clinical Research Facility, Addenbrooke's Hospital, Cambridge, United Kingdom
Co authors: Elaine Marriott & Caroline Humphreys
polly.tarrant@addenbrookes.nhs.uk

Abstract:

The Wellcome Trust Clinical Research Facility supports a wide range of research studies and clinical trials, using its resource of expertise to maintain excellence in both research practice and clinical care. In a recent multinational phase II/III clinical trial evaluating the safety and efficacy of weekly and every other week dosing regimes of Iduronate-2-Sulfatase enzyme replacement therapy, five of the seven participating young patients with mucopolysaccharidosis (MPS) Type II, Hunter's Syndrome, were relocated from overseas for just over 2 years. These participants, with ages ranging from eight to twenty six years, came from France, Italy and South Africa, and their relocation also involved that of all or part of their families. During the course of the study the nursing team were presented with a number of challenges,which highlighted areas for improvement in research practice. The poster demonstrates how we used John's Model of Reflective Practice to identify and examine key issues, evaluate implications for practice and clarify actions to be taken in order to maximise the efficacy of our research processes, and optimise participant experience.