60. Perceptions of support for people on the Blind and Partial Sighted Register (102)

Marie Dewhurst, Directortae Matron, St Paul's Eye Unit, Royal Liverpool and Broadgreen Hospitals NHS Trust, Liverpool, United Kingdom
marie.dewhurst@rlbuht.nhs.uk

Abstract:

Background

Despite substantial advances in the treatment of ocular disease in the last decade, the prevalence of severe vision loss in western society remains significant. The Department of Health (2003) reported that 157,000 people in England are on the “Blind Register” and 155,000 are on the “Partial Sight Register”. Obtaining the views and experiences of individuals on such registries is essential if services are to be responsive to their needs.

Aims

The aim of this study was to explore perceptions of people on the “Blind or Partial sight Register” with specific reference to the process of registration and its ability to provide access to support services.

Method

A grounded theory approach using focus group was used to explore the perceptions and experiences of people on the “Blind and Partial Sighted Register”. Focus groups have been used successfully in previous studies to elicit the views of the visually impaired, (Owsley, 2006). A sample of eighteen service users participated in three focus groups. Topics discussed included, how people felt about the process of registration and their experiences of accessing support. Data from the groups was analysed using constant comparative analysis, a grounded theory technique and emerging themes were identified.

Results

Early results demonstrate a general satisfaction with the actual process of registration, but some degree of dissatisfaction with the role of Health Professionals. The results also raised issues around body image and how those with a disability are perceived by society in general.

Conclusion

The findings from this important piece of work will be made available to service providers in both the voluntary sector and the NHS. It is hoped that these findings and other similar work will provide a basis for review of the registration process

Biography:

Marie Dewhurst is employed as Directorate Matron for Ophthalmology in the Royal Liverpool and Broadgreen Hospitals. Marie is in her final year of an MA in Research at Liverpool John Moores University.The Matrons role involves working with Organisations who support those with a visual impairment.It is hoped this study will open the door for closer collaboration between hospital and community.