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Implementation of an Electronic Palliative Care Coordination System (EPaCCS) in Lincolnshire using My RightCare ©

Louise Price, Professional Lead EPaCCS (Palliative and End of Life care), St Barnabas Lincolnshire Hospice

Louise's case study was completed in March 2016 and reflects 2016 prices

In 2011 and 2013 the national VOICES (Views of Informal Carers for the Evaluation of Services) survey raised concerns from bereaved carers in Lincolnshire about the coordination of palliative and end of life patient care. The survey found that patients on a shared register received better coordination of care and improved outcomes, however over 70% of patients were not found on any such register. To help address this problem, Lincolnshire's four clinical commissioning groups (CCGs) commissioned the implementation of an Electronic Palliative Care Coordination System or EPaCCS to facilitate the sharing of essential information between providers. Successful implementation enables decisions made between clinicians and patients to be recorded, shared and accessed at the point of delivery.

Louise Price, the Professional Lead for EPaCCS implementation in Lincolnshire, is clear that whilst EPaCCS provides an electronic means of communication, the initiative itself is not about deploying an IT solution. Instead, the IT enables the EPaCCS outcomes to be achieved.

Louise undertook an economic assessment of EPaCCS implementation in Lincolnshire which she developed following an extensive scoping exercise to learn from the experiences of the national pilot implantation sites. Louise concluded that implementation and future refinement must be clinically led to ensure behavioural, cultural and clinical change; the My RightCare© App would facilitate integrated care planning within and across sectors; stakeholder (particularly GP) engagement and CCG endorsement was fundamental; information Governance (IG) must be addressed early; training and education was key; a phased approach to implementation was required, acknowledging the diversity and size of Lincolnshire; dovetailing to LHAC Neighbourhood Teams, Urgent and Proactive Care Programmes was required; additional funding would need to be secured.

Louise costed the annual investment required to progress EPaCCS across Lincolnshire for the next 3 years and set these costs against the benefits that would be realised. Louise noted that there were benefits of implementing EPaCCS within Lincolnshire for patients, CCGs, providers and the system. Where data were available benefits have been monetised. Louise plans to continue to update her case study as more data becomes available. Her case study will support the decision-making of the four Lincolnshire CCGs, as whether to continue to invest in the current model of implementation.

You can contact Louise by email on

Case study
One page summary (coming soon)

Presentation from a breakfast event, Demonstrating the value of nurse-led innovations in End of Life Care, which took place on 27 April 2016

End of Life Care

Watch the video of the breakfast event, Demonstrating the value of nurse-led innovations in End of Life Care, which took place on 27 April 2016