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Patient focus

The latest news from the patient's perspective

Looking at the issues that relate to partnership working and shared decision making.

This theme looks at the issues that relate to partnership working and shared decision making. It covers people’s human rights including the right to privacy and confidentiality.

Patient focus

BBC News

Patient prescription fines double

Fines issued to patients in England claiming free prescriptions while not eligible have doubled, figures show.

BBC Health

More than 50,000 people alive due to organ transplants from the NHS

NHS Blood and Transplant said that figure included 36,300 kidney patients, 9,800 given livers, 1,900 who received a pancreas, and 1,000 who were given an intestine transplant.

BBC Health

Gene testing revolution

Cancer patients should be routinely offered DNA tests to help select the best treatments for them, according to England's chief medical officer.

British Medical Journal

When patient-centered is no longer enough the challenge of collaborative health

“Patient centered care is being subsumed by collaborative health, enabled by sweeping technological, economic, and social changes. Doctors are losing some of their power and will have to alter their behaviour to retain public trust.”

Department of Health

Reducing delays for people moving from hospital to social care

Plans to reduce the number of people waiting in hospitals, through closer partnership between local authorities and NHS organisations.


Person-centred paediatric care

This project describes a multi-disciplinary practice development initiative supporting a clinical team to ‘hear’ the voices of children, young people and their families so that person-centred paediatric care might become a sustainable reality.

Guardian Health

Coffee cuts the risk of dying from stroke and heart disease

People who drink coffee have a lower risk of dying from a host of causes, including heart disease, stroke and liver disease, research suggests – but experts say it’s unclear whether the health boost is down to the brew itself.

Guardian Health

Poor quality sleep could increase Alzheimer's risk, research suggests

Prolonged periods of poor sleep increase levels of proteins involved in Alzheimer’s disease, research suggests, although quality, not quantity, of sleep is at the root of the issue.

Journal of Internet Medical Research

Patient driven innovation for mobile mental health technology

This paper is the first in JMIR Mental Health’s patient perspective series, and it welcomes future contributions from those with lived experience.

Journal of Medical Internet Research

Cancer-Related Fatigue in Post-Treatment Cancer Survivors

The aim of this study is to outline the rationale, decision-making processes, methods, and findings which led to the development of a Web-based intervention to be tested in a feasibility trial.

New England Journal of Medicine

Patient reported outcomes

There is a growing chorus of support from clinicians, researchers, and payers for embracing patient reported outcomes measurement instruments in clinical care. But there are still important practical questions about how data on these outcomes should be collected, visualized, shared, and used to improve the quality of care.

NHS England

NHS patients with rare bone disease to benefit from potentially life-transforming drug due to “first of a kind” agreement between NHS England and the manufacturer

A new ‘managed access agreement’ between NHS England and manufacturer Alexion, alongside new draft NICE guidance issued, will broaden access of asfotase alfa to infants, children and adult patients with paediatric-onset HPP, who experience the most disabling symptoms and are expected to benefit most from therapy.

NHS England

NHS issues advice on mental health care for people affected by terror attacks and Grenfell

Six weeks on from the Manchester terror attack, NHS England has sent an open letter to GPs across the country with practical advice to help patients who may be suffering ongoing mental health problems following this and other recent traumatic events.

NHS National Institute Health Research

Complex health and care needs in older people

A highlight notice has been issued in the area of older people with complex health and care needs.

NHS Networks

New resources for patients asking about social care

York University has launched a website to help support older people and their relatives find information about social care in later life.

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