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Patient focus

The latest news from the patient's perspective

Looking at the issues that relate to partnership working and shared decision making.

This theme looks at the issues that relate to partnership working and shared decision making. It covers people’s human rights including the right to privacy and confidentiality.

Patient focus

British Medical Journal

Patient centred diagnosis: sharing diagnostic decisions with patients in clinical practice

Patient centred diagnosis is best practised through shared decision making; an iterative dialogue between doctor and patient, which respects a patient’s needs, values, preferences, and circumstances.

British Medical Journal

Patient involvement in medicines management after hospital discharge

Using the theoretical concept of resilience in healthcare, this study aimed to better understand the proactive role that patients can play in creating safer, resilient medicines management at a common transition of care.

Department of Health

Making a reality of the Accelerated Access Review: improving patient access to breakthrough treatments

This report shows how the government will work with industry and the health system to create an approvals system so that cost-effective breakthrough products can get to NHS patients as fast as possible.

International Alliance of Patients’ Organisations

Empowered patients in research: Moving beyond participation

This briefing clarifies what it means to be an empowered patient in research, and outlines how patients can be empowered before, during and after participation in a research study.

International Alliance of Patients’ Organisations

Effective patient involvement: building knowledge from the ground up

Isabel Saraiva chair of the European Lung Foundation discusses effective patient involvement and how we can continue to build knowledge and skills from the ground up.

International Alliance of Patients’ Organisations

Healthcare information for all

Access to practical healthcare information is fundamental to every patient's ability to take appropriate decisions and actions regarding whether and how they adopt healthy behaviours, how they prevent and manage illness and injury, when and where to seek help, and how to participate in shared decision-making with their healthcare provider.

International Alliance of Patients’ Organisations

My life as an empowered patient

Mark-John Clifford, Co-Founder of the blog Health in the Laugh Lane, relives his journey on how he became a more empowered patient. This is in the hope that through reading his story, other patients will pick up a few lessons.

Sense about Science

Researchers behind leading children's heart surgery survival website launch new patient and public engagement guide

Researchers from a flagship NIHR-funded study helping parents understand survival data about children’s heart surgery have launched a new best practice guide for involving patients and the public in research.

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