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Patient focus

The latest news from the patient's perspective

Looking at the issues that relate to partnership working and shared decision making.

This theme looks at the issues that relate to partnership working and shared decision making. It covers people’s human rights including the right to privacy and confidentiality.

Patient focus

Agency for Healthcare Research and Quality

AHRQ Health Literacy Universal Precautions Toolkit

The AHRQ Health Literacy Universal Precautions Toolkit, 2nd edition, can help primary care practices reduce the complexity of health care, increase patient understanding of health information, and enhance support for patients of all health literacy levels.

Alzheimer’s Society

Turning up the volume: unheard voices of people with dementia

This report reveals that nearly half of the UK adults surveyed had not started saving for the care and support they might need in the future, and a third agreed that before being asked, they had not considered the cost of dementia care and support.


Decision aids for people facing health treatment or screening decisions

Decision aids are interventions that support patients by making their decisions explicit, providing information about options and associated benefits/harms, and helping clarify congruence between decisions and personal values.

Guardian Health

Why men should keep a journal

Writing down how you are feeling has immense mental and physical health benefits – and men need it most.

Health Policy

Effects of person-centred care on health outcomes

This randomised controlled trial has investigated the effects of person-centred care provided to patients with acute coronary syndrome, using four different health-related outcome measures. Also, to examine the performance of these outcomes when measuring person-centred care.

King’s Fund

Mental health and new care models

While some of the vanguard sites developing new care models report promising early results from adopting a whole-person approach, the full opportunities to improve care through integrated approaches to mental health have not yet been realised.

Patient Information Forum

Perfect Patient Information Journey: Phase 1 Summary Report

In light of the growing move towards supporting people with long-term conditions to self-manage and share in decision-making about their care, PIF has launched a project aimed at creating a model pathway to support the ‘perfect patient information journey’ for people with long-term conditions.

Patient Information Forum

Toolkit: Six steps to creating a culture of person & family engagement

When patients and families are partners in planning and making decisions about their care, health outcomes are better, patient experience and satisfaction improves, and often, costs are lower.

Public Health England

Bowel cancer screening: benefits and risks

Healthcare professionals may find these leaflets useful to help inform patients of the benefits of bowel cancer screening, as well as the risks of bowel cancer. It is available in English, large print, 20 other languages and mp3 audio format.

Together for short lives

Perinatal pathway for babies with palliative care needs

This pathway has been developed by Together for Short Lives with expert input from ethicists and clinicians working across obstetrics, antenatal and neonatal care, and children’s palliative care. It is designed to support health professionals to deliver sensitive and timely support, enabling families to spend time with their baby in a more home-like environment, and with as little technologically dependent care as possible.

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