The play told the story of Josh Cawley, who was 22 when he finally died from the catastrophic injuries his birth parents inflicted on him. These resulted in his inability to speak or to move from his wheelchair.
He was adopted by Lynn Cawley, whose devotion to Josh ensured that he lived his short life as positively and "normally" as possible. As well as being his mum, Lynn was expected to be his palliative care consultant, his nurse, his campaigner for compensation and she had to fight the ongoing battles with the system.
The play explores their real story - having to accept that Josh's needs were "too complex" for the hospice - dealing with Josh's transition from boy, to teenager to adult and all the time being his interpreter.
The first task was to raise money for filming, so the play could be shared more widely. The experience of the RCN was invaluable here, and we were delighted with the work that George Horne from Made by Wander produced.
It was also wonderful that Joey Taylor, an actor who had performed the stage version many times, was able to reprise the role for the film. Lynn was hugely supportive of the project, and perhaps the most rewarding part of the whole process for me was meeting and interviewing her for the filmed question and answer section that follows the film.
Once the film was complete the next step was ensuring the resources were used and seen. Again the RCN's links with other organisations was invaluable.
It has been a lot of work over the past two years, but I really think the play raises important issues and am delighted to have helped in making Josh's story more widely available for nurses.