Patient focus

The latest news from the patient's perspective

Looking at the issues that relate to partnership working and shared decision making.

This theme looks at the issues that relate to partnership working and shared decision making. It covers people’s human rights including the right to privacy and confidentiality.

Patient focus

Alzheimer’s Society

Dementia care costs to nearly treble in next two decade

Research has shown that by 2040, while the number of people living with dementia in the UK is expected to nearly double (to 1.6 million), the cost of social care is expected to almost triple, increasing from £15.7 to £45.4 billion. It falls to people living with dementia and their families to pay the majority of these costs.

Dementia Australia

Dying well: improving palliative and end of life care for people with dementia

Dementia Australia (formerly Alzheimer’s Australia) has released this brief discussion paper calling for better palliative and end of life care for those living with dementia.

Digital Health

Orthopaedic hospital teams up with myrecovery for app

Veteran patients are benefitting from an app that provides information about treatment. The app is designed for orthopaedic patients and aims to help them feel more informed about their pre and post-op care.

King’s Fund

Unconventional health and care

In this report the King’s Fund looks at five organisations that are thinking differently about how they support patients and service users, and considers what we can learn from their unconventional approaches.

FoNS Centre for Nursing Innovation

‘If we truly cared’: understanding barriers to person-centred nursing in correctional facilities

This qualitative study explored US nurses’ experiences and perceptions of caring in carceral environments to analyse the possibilities of and barriers to enacting person-centred care for incarcerated people.

King’s Fund

Why can't I get a doctor's appointment?

Solving the complex issue of GP access. Public satisfaction with general practice is lower now than it has ever been. This article runs through the proposed solutions to issues around GP access and consider their potential effectiveness.

Mental Health Consortium

Quit smoking services for people with severe mental illness

The Mental Health Consortium has been commissioned to investigate how to help people with severe mental illness to stop smoking.

NHS England

Overall Patient Experience Scores: 2019 Community Mental Health Survey Update

NHS England has published the latest statistical information on patients’ experience of mental health services in the NHS. This is an update to include results from the 2019 Community Mental Health Survey.

NHS England

New frameworks launched to improve care and support for autistic people and people with learning disabilities

Drawing directly on the experience of service users, they were jointly developed at every stage by autistic people, people with learning disabilities and their families and carers.

NHS England

NHS Oversight Framework Patient and Community Engagement Indicator

NHS England and NHS Improvement recently published the updated NHS Oversight Framework for 2019/20.

Picker Institute

Children and Young People’s Patient Experience Survey 2018

Overall, the survey results showed that most children and young people have good experiences of care in hospital. 70% of those aged 8-15 said they were looked after “very well”, and 82% of parents of younger children said they were “always” well looked after. Despite this, there are still some key areas where care could be improved – including around involvement and entertainment.

Royal College of Obstetricians & Gynaecologists

Better for women: improving the health and wellbeing of girls and women

The Royal College of Obstetricians and Gynaecologists (RCOG) is calling for better joined up services, as part of its “Better for Women” report.

Social Care Institute for Excellence

Views of personalisation (video series)

These videos explore key aspects of personalisation. Care home staff, directors and commissioners and national organisations talk about different aspects of personalisation, and how they can improve quality of care.

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