Children and Young People: Palliative Care

Use this guide to find information resources about children and young people's palliative care including books, reports and journal articles.

Last updated: 17/09/2024

Key Resources
Books
Journals

Key Resources

Royal College of Nursing (2018) RCN competencies: caring for infants, children and young people requiring palliative care. 2nd edn. London: RCN.

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Blackburn M et al. (2019) Talking about sex, sexuality and relationships: guidance and standards. For those working with young people with life-limiting or life-threatening conditions. Bristol: Together for Short Lives.

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Brook L (ed.) (2024) Association of Paediatric Palliative Medicine master formulary. 6th edn.

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Chambers L and Kelly K (2023) Stepping up: A guide to developing a good transition to adulthood for young people with life-limiting and life-threatening conditions. Bristol: Together for Short Lives.

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Jassal S S (ed.) (2022) Basic symptom control in paediatric palliative care. 10th edn. Bristol: Together for Short Lives.

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Together for Short Lives (2019) Caring for a child at end of life. A guide for professionals on the care of children and young people. Bristol: Together for Short Lives.

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Together for Short Lives (2018) Hidden lives: tackling the social exclusion of families caring for a seriously ill child. Bristol: Together for Short Lives.

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Together for Short Lives (2018) A guide to children’s palliative care: supporting babies, children and young people with life-limiting and life-threatening conditions and their families. 4th edn. Bristol: Together for Short Lives.

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We would like to thank the RCN CYP Palliative Care community and Sue Langley - Library & Information Services Manager, East Anglia’s Children’s Hospices, for their input into the development of this subject guide.