Key Resources
Royal College of Nursing (2018) RCN competencies: caring for infants, children and young people requiring palliative care. 2nd edn. London: RCN.
Blackburn M et al. (2019) Talking about sex, sexuality and relationships: guidance and standards. For those working with young people with life-limiting or life-threatening conditions. Bristol: Together for Short Lives.
Brook L (ed.) (2024) Association of Paediatric Palliative Medicine master formulary. 6th edn.
Chambers L and Kelly K (2023) Stepping up: A guide to developing a good transition to adulthood for young people with life-limiting and life-threatening conditions. Bristol: Together for Short Lives.
Jassal S S (ed.) (2022) Basic symptom control in paediatric palliative care. 10th edn. Bristol: Together for Short Lives.
Mancini A, Uthaya S, Beardsley C, Wood D and Modi N (2014) Practical guidance for the management of palliative care on neonatal units. London: Chelsea and Westminster NHS Foundation Trust.
Pinney, A (2016) Understanding the needs of disabled children with complex needs or life-limiting conditions. Council for Disabled Children.
Together for Short Lives (2019) Caring for a child at end of life. A guide for professionals on the care of children and young people. Bristol: Together for Short Lives.
Together for Short Lives (2013) A core care pathway for children with life-limiting and life-threatening conditions. 3rd edn. Bristol: Together for Short Lives.
Together for Short Lives (2018) Hidden lives: tackling the social exclusion of families caring for a seriously ill child. Bristol: Together for Short Lives.
Together for Short Lives (2018) A guide to children’s palliative care: supporting babies, children and young people with life-limiting and life-threatening conditions and their families. 4th edn. Bristol: Together for Short Lives.
Together for Short Lives (2017) A perinatal pathway for babies with palliative care needs. 2nd edn. Bristol: Together for Short Lives.
We would like to thank the RCN CYP Palliative Care community and Sue Langley - Library & Information Services Manager, East Anglia’s Children’s Hospices, for their input into the development of this subject guide.