Royal College of Nursing (2018) RCN competencies: caring for infants, children and young people requiring palliative care (2nd edition), London: RCN.
Chambers L (2015) Stepping up: a guide to enabling a good transition to adulthood for young people with life-limiting and life-threatening conditions, Bristol: Together For Short Lives.
National Institute for Health and Care Excellence (2016) End of life care for infants, children and young people with life-limiting conditions: planning and management, London: NICE.
NICE guidance is officially England only.
Pinney, A (2016) Understanding the needs of disabled children with complex needs or life-limiting conditions, Council for Disabled Children.
Jassal S (2016) Basic symptom control in paediatric palliative care: the Rainbows Children's Hospice guidelines (9.5 edition), Bristol: Together for Short Lives.
Together for Short Lives (2013) A core care pathway for children with life-limiting and life-threatening conditions (3rd edition), Bristol: Together for Short Lives.
Together for Short Lives (2018) Hidden lives: tackling the social exclusion of families caring for a seriously ill child, Bristol: Together for Short Lives.
Together for Short Lives (2017) A perinatal pathway for babies with palliative care needs (2nd edition), Bristol: Together for Short Lives.
We would like to thank Sue Langley - Library & Information Services Manager, East Anglia’s Children’s Hospices, for her input into the development of this subject guide.