Palliative care for children and young people with life-limiting conditions focuses on improving the quality of life for the child/young person and support for the family and includes the management of distressing symptoms, provision of care through death and bereavement. Use this guide to find information resources about recognising and caring for a child with life limiting conditions including books, reports and journal articles.
Royal College of Nursing (2018) RCN competencies: caring for infants, children and young people requiring palliative care (2nd edition), London: RCN.
We would like to thank Sue Langley - Library & Information Services Manager, East Anglia’s Children’s Hospices, for her input into the development of this subject guide.
Black B, Wright P and Limbo R (2016) Perinatal and pediatric bereavement in nursing and other health professions, New York: Springer Publishing Company.
Boath E and Pfund R (2016) Palliative care nursing of children and young people, London: Routledge.
Carter B, Levetown M and Friebert S (2013) Palliative care for infants, children, and adolescents: a practical handbook (2nd edition), Baltimore: Johns Hopkins University Press.
Dahlin C, Coyne P and Ferrell B (2016) Advanced practice palliative nursing, New York: Oxford University Press.
Goldman A, Hain R and Liben S (2012) Oxford textbook of palliative care for children (2nd edition) Oxford: Oxford University Press.
Grinyer A (2012) Palliative and end of life care for children and young people: home, hospice and hospital, Chichester: Wiley-Blackwell.
Hain R and Jassal S (2016) Paediatric palliative medicine (2nd edition), Oxford: Oxford University Press.
Wolfe J, Hinds P and Sourkes B (2011) Text book of interdisciplinary pediatric palliative care, Saunders.
Journals of interest for children and young people palliative care. Use these links to see details of availability.
Author of this guide
RCN Library and Archive Service
Page last updated - 21/05/2020
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