Children and Young People: Palliative Care
Use this guide to find information resources about children and young people's palliative care including books, reports and journal articles.
Last updated:
08/01/2026
Key Resources
Royal College of Nursing (2025) Caring for infants, babies, children and young people requiring palliative care a career and education framework. London: RCN.
Clinical resources on RCN Learn
Blackburn M et al. (2019) Talking about sex, sexuality and relationships: guidance and standards. For those working with young people with life-limiting or life-threatening conditions. Bristol: Together for Short Lives.
Brook L (ed.) (2024) Association of Paediatric Palliative Medicine master formulary. 6th edn.
Chambers L and Kelly K (2023) Stepping up: A guide to developing a good transition to adulthood for young people with life-limiting and life-threatening conditions. Bristol: Together for Short Lives.
Jassal S S (ed.) (2022) Basic symptom control in paediatric palliative care. 10th edn. Bristol: Together for Short Lives.
Together for Short Lives (2019) Caring for a child at end of life. A guide for professionals on the care of children and young people. Bristol: Together for Short Lives.
Together for Short Lives (2018) Hidden lives: tackling the social exclusion of families caring for a seriously ill child. Bristol: Together for Short Lives.
Together for Short Lives (2018) A guide to children’s palliative care: supporting babies, children and young people with life-limiting and life-threatening conditions and their families. 4th edn. Bristol: Together for Short Lives.
We would like to thank the RCN CYP: Community and Multidimensional Care member community and Sue Langley - Library and Information Services Manager, East Anglia's Children's Hospices, for their input into the development of this subject guide.
Books
Bellieni C V (2022) A new holistic-evolutive approach to pediatric palliative care. Cham: Springer Nature.
Bruera E, Higginson I J, Gunten C F von and Morita T (2021) Textbook of palliative medicine and supportive care. 3rd edn. Milton: CRC Press.
Cooper D B and Cooper J (eds.) (2019) Palliative care within mental health: ethical practice. Milton: Routledge.
Davies B, Steele R and Baird J (2022) Pediatric palliative care: a model for exemplary practice. Oxford: Routledge.
Downing J (ed.) (2020) Children's palliative care: an international case-based manual. Cham: Springer.
Hain R, Goldman A, Rapoport A and Meiring M (2021) Oxford textbook of palliative care for children. 3rd edn. Oxford: Oxford University Press.
Limbo R K, Wool C and Carter B S (2020) Handbook of perinatal and neonatal palliative care: a guide for nurses, physicians, and other health professionals. New York: Springer.
Mancini A, Price J and Kerr-Elliott T (eds.) (2020) Neonatal palliative care for nurses. Cham: Springer.
Nash P, Hussain Z, and Parkes M (2015) Multifaith care for sick and dying children and their families: a multi-disciplinary guide. London: Jessica Kingsley.
Nash S, Nash P, and Darby K (2015) Spiritual care with sick children and young people: a handbook for chaplains, paediatric health professionals, arts therapists and youth workers. London: Jessica Kingsley.
Preedy V R (2019) (ed.) Handbook of nutrition and diet in palliative care. 2nd edn. Milton: CRC Press.
Rodriguez A M (2023) Death, dying and palliative care in children and young people: perspectives from health psychology. Milton: Routledge.
Watson M, Ward S, Vallath N, Wells J and Campbell R (eds.) (2019) Oxford handbook of palliative care. 3rd edn. Oxford: Oxford University Press. Chapter 16 covers paediatric palliative care.
Watson M (2016) Palliative adult network guidelines and paediatric palliative care guidelines. 4th edn. Academic Health Science Network.
Book subject searches
Use these links to see details of books the RCN libraries hold on the topic
Journal articles
Use these links to see details of journal articles on each topic.
Journals
Journals of interest for children and young people palliative care. Use these links to see details of availability.
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Nadia Munir
Editor of this guide
RCN Library and Museum
Upcoming events relating to this subject guide
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04 Sep 2026
London
RCNi Nursing Careers and Jobs Fair - London 2026
Whether you’re a nurse, healthcare assistant, newly qualified nurse or nursing student, explore new career opportunities, meet healthcare employers, get expert career guidance and attend free CPD seminars at an RCNi Nursing Careers and Jobs Fair.
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10 Jun 2027
London
RCN Children and Young People's Conference 2027
Page last updated - 08/01/2026
