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End of Life Care

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End of Life Care

“The majority of deaths in the United Kingdom occur after a period of chronic illness. During this time people often require ongoing care which may include end of life care. It helps them to live as well as possible until they die. It also includes support for their family or carers. A person is ‘approaching the end of life’ when they are likely to die within the next 12 months.” (RCN, 2015, Getting it right every time). Use this guide to find information resources about end of life care including books, journal articles and reports.

Last updated: 19/09/2017

Key Resources

Getting it right every time: fundamentals of nursing care at the end of life Royal College of Nursing (2015) Getting it right every time: fundamentals of nursing care at the end of life, London: Royal College of Nursing.
RCN: Getting it right every time: the fundamentals of nursing care at the end of life
  • Online learning resource for nursing staff:
    View page
Department of Health (2016) Our commitment to you for end of life care. The government response to the review of choice in end of life care, London: DH.
Marie Curie Cancer Care and the Bevan Foundation (2014) Death and dying in Wales: an analysis of inconsistencies in access to specialist palliative care and hospital activity in the last year of life, Penarth: Marie Curie Cancer Care.
National Institute for Health and Care Excellence (2017) Care of dying adults in the last days of life: NICE standard QS144, London: NICE.
National Institute for Health and Care Excellence (2015) Care of dying adults in the last days of life: NICE guideline NG31, London: NICE.
  • NICE guidance is officially England only.
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NICE Evidence guidance search: end of life care
  • Please check that guidance is applicable for your country.
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Nursing and Midwifery Council (2015) End of life care: our position, London: NMC.
RCN: Getting it right every time: nutrition and hydration care at the end of life.
  • Online learning resource for nursing staff:
    View page
RCN when someone asks

Royal College of Nursing (2016) When someone asks for your assistance to die: RCN guidance on responding to a request to hasten death.

Review of Choice in End of Life Care Programme Board (2015) What’s important to me. A review of choice in end of life care, London: DH.
We would like to thank the RCN Pain and Palliative Care member community for their input into the development of this subject guide.

Books

Bardy Choosing Bardy S (2016) Choosing end of life nursing, Adelaide: ATF Press. 
De Souza J & Pettifer A (2013) End-of-life-nursing care: a guide for best practice, London: Sage. De Souza J & Pettifer A (2013) End-of-life-nursing care: a guide for best practice, London: Sage.
Gordon Psychosocial Gordon, P S (2016) Psychosocial interventions in end-of-life care: the hope for a "good death", London: Routledge.
Hayes A (2014) Pathways through care at the end of life: a guide to person-centered care, London: Jessica Kingsley. Hayes A (2014) Pathways through care at the end of life: a guide to person-centered care, London: Jessica Kingsley.
Larkin P - Compassion Larkin P J (2016) Compassion: The essence of palliative and end-of-life care, Oxford: Oxford University Press.
Matzo M L & Sherman D W (2014) Palliative care nursing: quality care to the end of life, New York: Springer Publishing. Matzo M L & Sherman D W (2014) Palliative care nursing: quality care to the end of life, New York: Springer Publishing.
Nicol J (2014) Palliative and end of life care in nursing, London: Sage Nicol J (2014) Palliative and end of life care in nursing, London: Sage.
Norlander L (2014) To comfort always: a nurse Norlander L (2014) To comfort always: a nurse's guide to end-of-life care, Indiana: Sigma Theta Tau International.
O’Mahony S (2016) The way we die now, London: Head of Zeus Ltd Mahony S (2016) The way we die now, London: Head of Zeus Ltd.
Sadler C (2015) A practical guide to end of life, Maidenhead: Open University Sadler C (2015) A practical guide to end of life, Maidenhead: Open University.
Sterckx continuous sedation Sterckx S (2013) Continuous sedation at the end of life: ethical, clinical and legal perspectives, New York: Cambridge University Press. 

Book subject searches

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Journal articles

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Journals

Journals of interest for end of life care. Use these links to see details of availability.

Explore

View articles from the RCN news pages relating to end of life care:

Social Care Institute for Excellence (2014) End of life care: achieving dignity for those with dementia, Great Britain: Social Care TV (video).

Social Care Institute for Excellence (2014) and palliative care: Thinking about the words we use, Great Britain: Social Care TV (video). 

 

 


This subject guide relates to:

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End of life care: Clinical topic
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Pain and Palliative Care Forum
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Kat Baumgartner

Author of this guide

RCN Library and Archive Services

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