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The Culture of Dying Matters

Amanda Jones 5 May 2025

Future Care Planning Representative, Amanda Jones, discusses the importance of talking about death and shares how Paul Sartori Hospice at Home marks Dying Matters Awareness Week.

Amanda Jones, Paul Sartori Hospice at Home

The culture around dying tends to be one of taboo, and a subject that is not openly discussed. Dying Matters Awareness Week, which this year is taking place 5-11 May, provides an opportunity to raise awareness of the subject of dying and to talk openly and honestly about our feelings around death and dying. It gives us permission to have conversations and allows us to explore options and information and to consider future care planning. Those who are struggling with bereavement can access support. Death is one of the few certainties in life but it’s good to remember that talking about it doesn’t bring it closer.

In previous years, the Future Care Planning Team has marked Dying Matters Awareness Week with an “escape room” comprising of challenges related to future care planning and hosted topical plays: “Operation Hummingbird” explored the experiences of Jimmy, an eleven-year-old whose mother is diagnosed with a terminal illness, through the eyes of his grown-up self; “Colder Than Here” was a bittersweet black comedy tackling the difficulties of a dysfunctional family grappling with the final months of their mum’s life.

Paul Sartori Hospice at Home marks Dying Matters Awareness Week

This year, Paul Sartori Hospice at Home has organised a number of events. The Paul Sartori Community Choir will be launching Dying Matters Awareness Week with a lunchtime concert in Haverfordwest; the Paul Sartori Hospice at Home and Future Care Planning teams will be at an Information and Activities Day in Milford Haven, along with Sandy Bears (bereavement counselling for children), Carers Support Pembrokeshire, Natural Burial and Celebrant services and a local solicitor (for information on will writing); and they’ll be using humour to get people to engage at the Dead Good Quiz in Dinas Cross, where all the questions are related to death.

Learn more about Dying Matters Awareness Week.

Amanda Jones

Amanda Jones

Future Care Planning Representative

Amanda’s background is in community nursing, and she has worked at Paul Sartori Hospice at Home for 8 years. Since September 2024, Amanda has worked in the Future Care Planning (FCP) Team in a unique role that was created to promote the importance of future care planning in the community and to help the public to engage with conversations around end of life. This role and the majority of the FCP Team’s activities are funded by the National Lottery Community Fund People & Places Programme.  Amanda’s working time is spent delivering presentations and talking to community groups across Pembrokeshire, linking in with the residential and nursing homes in the area, and presenting to professional groups and forums.

Page last updated - 24/04/2025